Albinism, Climate Awareness, and AEIF in Kenya
Written by Alexandra McCaffity, a VSFS Intern with the U.S. Department of State. She is currently pursuing a Bachelor’s Degrees in Human Communication, Spanish, and Political Science with Trinity University
In the city of Nairobi, Alan Herbert, a Professional Fellows Program ExchangeAlumni and passionate advocate for the rights of individuals with albinism, embarked on a groundbreaking project to address the intersection of climate change and the unique vulnerabilities faced by this marginalized community. While Alan's journey began unexpectedly, a shared passion among friends for raising disability awareness paved the way for him to make a lasting impact on the overlooked aspects of the climate-change discourse.
Alan's interest in disability advocacy was ignited during an information session on the PFP international exchange program he attended on a whim. What started as a casual exploration of opportunities quickly transformed into a mission to create positive change. His project, titled "Impact of Climate Change on Individuals with Albinism," focused on regions facing heightened climate change impacts—Machakos, Kajiado, Kitui, and Nairobi counties. The comprehensive plan reached over 1,000 people in Machakos county with albinism through a targeted climate-change awareness campaign, continuing in its efforts to the remaining three counties. Alan envisioned a future where this community not only understood the risks posed by climate change, but also had the tools to mitigate these risks, which can include dangerous sunburns or skin cancer. Inspired and motivated by a Professional Fellows Program (PFP) alumna, Alan took the initiative to apply to the program, recognizing the potential to advocate for people with albinism.
Teaming up with Professional Fellow ExchangeAlumni Rachel Temoin and Sarah Wang'ombe, Alan combined their respective areas of expertise. Although Alan was not yet a PFP alumnus, Sarah and Rachel’s status as alumni led them to make the strategic decision to apply for the Alumni Engagement Innovation Fund (AEIF) grant, successfully securing the necessary support to launch their project. “This project allowed me to merge my academic knowledge with the practical application of addressing climate change's impact on individuals with disabilities,” said Sarah, program manager.
Following the grant award, they encountered unforeseen challenges and surprises during the implementation phase, specifically in providing healthcare and information in rural areas. One startling revelation was the lack of awareness among healthcare workers regarding issues affecting minority groups. The project recognized the urgent need for training programs aimed at dispelling misconceptions about albinism, ensuring that healthcare providers fully understood the unique challenges faced by this community, namely the dangers of increased sun exposure, extreme temperatures, or displacement caused by environmental damage.
Collaboration played a crucial role in shaping the success of the project. Through the fellowship and friendship, Alan, Rachel, and Sarah formed a cohesive team, each contributing unique skills that felt like pieces of a puzzle coming together to start the project. Reflecting on his journey, Alan emphasized the role of networking with alumni, advising aspiring change-makers to take their time and align with accountable organizations. His organization, Black Albinism, which started in college and grew with AEIF support, became a credible platform for advocacy. Alan stressed the significance of collaboration, staying in touch with alumni, and engaging embassy offices for support. "If I hadn't networked with other alumni, the Black Albinism project might have remained a distant idea. It's essential to recognize that seemingly far-fetched projects demand guidance and connection,” Alan said.
Technology has also become a key ally in Black Albinism’s quest to bridge the information gap, and exciting initiatives are being developed as outcomes from the project’s growth. The UVSAFE initiative created by the team, a platform similar to Amazon, will provide government information and services, daily UV index alerts, weather reminders, and resources for sunscreen application, parenting, and youth fashion. This innovative approach will not only facilitate information dissemination but will also allow for sunscreen donations to reach those in need. The project also plans to address the delicate balance individuals with albinism face between protection and fashion trends. Alan is continuing to advocate for adaptive and protective yet fashionable clothing, emphasizing the importance of considering both functionality and style in ensuring the community's well-being.
Alan's story is one of resilience, passion, and a commitment to making a difference. In the face of climate change, he has not only raised awareness but also pioneered solutions, leaving an indelible mark on the lives of individuals with albinism and inspiring others to join the cause.